Julian is a 7-year-old, 1st grader from Sudan. He was diagnosed at only 9 months of age through a genetics test and a muscle and nerve biopsy, confirming a spontaneous micro deletion in the DMD gene and dystrophin deficiency. Spontaneous, meaning there is no genetic history of this in either parents of Julian. This type of mutation doesn›t affect future offspring of his own or his siblings, just him.
Julian enjoys going to school, where he has met some of his life-long friends and supporters within the school and community. He loves sloths and learning about God’s creatures. He enjoys playing video games with his best friend and older brother. He also enjoys playing cars with his younger sister.
While living in Sudan, the community has had a positive impact on his life and well-being by supporting him and showing concern for him.
Over the years, the strength in his legs have decreased and is currently using a motorized wheel chair as needed. His classmates and teachers have adapted to these changes and have been wonderful by showing nothing but love and support.
You can support 100,000 kids and adults who will be served by MDA this year by making a donation to TEAM JULIAN. To make a donation, go online to www2.mda.org, click donate, search for team, and type Team Julian. Every dollar counts to help children/adults in need of medical equipment, funding camps, as well as funding research to help find cures.
Please join us for Team Julian›s MDA Muscle Walk!
Date: April 28th @ 9am
Location: Lubbock, Buddy Holly Recreational Center